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Just diagnosed with Lyme disease

 
pollinator
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After 12 days of being quite ill, I developed big red splotches all over my body.  That was my first clue it was Lyme disease.  Started on antibiotics on Sunday.  I'm still having a lot of trouble thinking clearly.  If anyone has any advice on beating this, I would love to hear it.  Thank you.
 
steward & bricolagier
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HUGS!
No good advice here, just hugs....
 
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So sorry for the diagnosis Trace

I would study this man's protocol http://buhnerhealinglyme.com/

I tested positive for tick fever and at the time, even though lyme showed up in my test results also, doctors claimed it wasn't here yet so it was a false positive.

I did the doctor recommended antibiotic and also an herbal tincture that I took for a lot longer that I think really did more good. It was teasel and japanese knotweed.  I still take astragalus to keep my immune system up although I think there were reasons to not take it along with some of the other things he suggests?

If you can wade through the information at his site I think some of the herbs and preparations he suggests might be very helpful along with the conventional antibiotics.  
 
pollinator
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Oh, damn, I'm so sorry!

I've never had Lyme.  But last year I got another tick-borne disease, anaplasmosis.  It wrecked my judgment very badly (I couldn't figure out how to work my digital thermometer that I'd had for years).  Thus, I waited too long for medical treatment and ended up hospitalized with sepsis.  

While I was physically quite sick, and had the worst headache of my life (think:  railroad spikes into the skull), the worst symptoms were the loss of cognitive functioning.  I was doing occasional work as a forensic psychologist, and a month after I got sick, I found myself completely unable to finish a report that was due, and very aware that I was utterly unable to get on the witness stand and testify.  (Not because I couldn't do that normally - it was my career.  Because I couldn't concentrate and my judgment was impaired.)

It DID get better!  It took months.

But that was my disease, and I'm hoping it's not yours.

My advice? Take the antibiotics, all of them, and get more if the symptoms haven't disappeared.  The treatment for leftover Lyme disease (many people seem to have an extended set of symptoms, kind of like Covid, after they've "recovered.") is long-term antibiotics, and you don't want that if it's at all possible to help it.  So take the meds and eat yogurt or other probiotic food, especially right after you finish the meds.   The accepted wisdom in the medical community is that this doesn't exist (the long-term symptoms).  So be sure it's knocked out now, so you don't have to fight with doctors later.

I wasn't aware of or thinking about any alternative treatments when I was sick, but it seems like a good thing to investigate.  Be sure to check for drug interactions with the herbal remedies.  drugs.com has a great tool for interactions, and includes many supplements; it might help.  You sure don't want to be taking anything that messes with the actions of the doxycycline, or whatever you're taking.

My heart goes out to you!  Wishes and prayers for rapid healing!  (Most people do.)  
 
pollinator
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Yes! There is a really good protocol that worked for many people including myself!
Take this serious and call Cranberry wellness Center. Ask them for the Lyme Protocol.
You can probably even order the supplies from them or get them online once you know what to get.

GO TO THIS LINK! CALL THEM! DO THE PROTOCOL!
You'll likely be completely restored in about 4 months!

http://www.cranberrywellnesscenter.com/

 
master gardener
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Oh, no. I'm so sorry to hear this, Trace...
 
pollinator
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So sorry to hear that, Trace. That sucks. Sending hugs and wishes for speedy healing your way!

I've never had Lyme, so I can't offer too much help. You might check out this for suggestions of some supportive herbs that could help you through it in conjunction with the antibiotics. Same fellow has this video as well, bit long and he can ramble at times, but often has really good advice. He also explains a fair bit about the disease here. Herbal remedies for the symptoms of lyme
 
steward
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I got it last year.  After some diddling around with incorrect diagnoses they finally got an older doc in the room who identified it from 10' away.  Switched to the correct antibiotics and it cleared right up.  Catching it fast and dealing with it is the way to go.
 
master gardener
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Good luck, Trace.

The one person I know who had "Lyme disease", said that some ticks are actually carrying a number of different nasty things, so if it seems like you still have symptoms after Round 1, it's because you need the docs to look for what might still be there and do a Round 2. The fellow ended up in the order of 5 rounds, but when I last saw him, he was doing well, volunteering and piloting his private plane, so there are success stories, and I really hope you're one of them.
 
pollinator
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Catching it early helps a TON.  I went undiagnosed for years and the recovery took that much longer.

Do EVERYTHING you can for natural immunity boost and inflammation reduction.  Diet is more important than drugs to true recovery.
 
pollinator
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Sorry to hear about your diagnosis, Trace. It sounds like there are quite a few people on here with more info than I realised existed.

Take care of yourself. Good luck, and keep us posted.

-CK
 
Jason Vath
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The protocol I'm talking about worked for a guy who had lymes for 20 years.
Nothing else worked for him.

This protocol works in multiple ways:

It ramps up the immune system
It kicks the spirochetes out of the cells
it dissolves the biofilm they hide out in
It stops their replication.

It works well.

GO TO THIS LINK! CALL THEM! DO THE PROTOCOL!
You'll likely be completely restored in about 4 months!

http://www.cranberrywellnesscenter.com/

 
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Trace Oswald wrote:After 12 days of being quite ill, I developed big red splotches all over my body.  That was my first clue it was Lyme disease.  Started on antibiotics on Sunday.  I'm still having a lot of trouble thinking clearly.  If anyone has any advice on beating this, I would love to hear it.  Thank you.




I have no doubts on your diagnosis, but wanted to point out to others, that you can have 12 people with 12 DIFFERENT symptoms,  thus the reason it so often goes undetected for so long as often the testing goes after a particular symptom, and not Lymes.

With that said, the treatments seem to also vary greatly.  But the antibiotics, ad mistered within weeks of bite seems pretty effective.  Going after it months into seems much harder.

I know I am not helping much, but in our area (close to the hottest spot in the nation) for Lymes, there seems to be a few "people" that ONLY treat this, and do it well. I am not sure if this is true all over the USA, but there would be few full blown medical doctors that tell you this.

Best of success.
 
steward
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While I have never been diagnosed with lyme disease, I am into using natures pharmacy for healing the body. May I suggest these books if this path interests you.


source


source


Good luck fellow friend.



 
Trace Oswald
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I'm too tired to make a long reply, but I want to thank everyone for their suggestions and well-wishes.  I ordered the Buhner book, as well as the Healing Lyme book James mentioned.  I also emailed the Cranberry Wellness Center.  Mike, glad to hear that antibiotics worked well for you.  Hope I am as fortunate.  Anne, the cognitive issues are a struggle for me as well.  Things I can normally fly through now take really concentrated thought, and even then it is a struggle.

I'll let you all know how this progresses.  Again, thanks for the thoughts and kindness.
 
pollinator
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The Netflix show Unwell says bee venom can cure lyme disease. As the worlds worst beekeeper allow me to offer to get you stung over and over by accident.
 
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I was diagnosed with Lyme disease a year ago this past August, and in September had a spinal tap done and discovered it was disseminated line. Because you have rashes all over your body, you may want to talk with a physician and just find out if you also have disseminated Lyme. that means it has crossed the blood brain barrier, and happens with multiple rashes like I (and you) had
the protocol for that is slightly different.
This past August I was on IV antibiotics for 28 days. I do feel better because of it, and I also gave up processed foods and sugar, which I'm sure also helped. I had no exhaustion, no stomach upset, and no adverse reactions to iv antibiotic.
During a year between my diagnosis and the IV antibiotics I was on the buher protocol, which I administered myself. A local Herb Farm makes the mix, and I would just add it to water twice a day. I noticed a definite difference the days where I forgot to take that. So herbs really do help, and that's where I would start because you can do that immediately on your own.
I would avoid the cranberry Wellness Center, simply because they probably administer the buhnner protocol and it's more economical for you to find a place where you can either buy the herbs in capsule form or the tincture themselves. Spend your money on medicine, not on people telling you what to take. (us their website sucks) you may also want to look for a licensed Lyme MD (llmd) if you have insurance.
I ordered buhners Lyme protocol capsules from green dragon botanicals when the herb farm didnt have the mix i wanted. i use tweefontein herb farm, you can find them online.
If money is No Object, there's a local doctor in my area who is supposedly the best in the US, Dr Bock. But it cost tens of thousands, if not more to heal with him.
Good luck. You can heal from Lyme, but it takes a little bit of work. I live in the Hudson Valley which is the Lyme capital of the country apparently. And there are plenty of people walking around here that had Lyme and and managed to heal from it. ther can be lasting effects though, so start on those herbs asap.
 
Trace Oswald
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I haven't received the book yet, but from Buhner's website, I ordered herbs for the Core protocol.  I have the following on the way:

Japanese Knotweed
Cat's claw
Andrographis
Astragalus

I also ordered Crypolepis Sanguinolenta based on another study I read.

I'll start on the herbs when they arrive.  I'm feeling better already from the doxy, but I would like to knock this all the way out before it becomes chronic.

The irony of this is that I posted an article here that I saw about Japanese Knotwood and it's potential to cure Lyme disease months ago, before I ever got it.  I have been concerned with Lyme for awhile.  It's very prevalent in this area and I pick dozens of deer tick off every spring and fall.
 
pollinator
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Something to be aware of: Herxheimer Reactions.

Herxheimer Reactions, Defined

Herxing was first observed in syphilis patients by dermatologists Adolf Jarisch and Karl Herxheimer in the late 1800s and early 1900s, who noticed that sufferers receiving treatment often got worse before they got better. The phenomenon was dubbed the Jarisch-Herxheimer Reaction, and has since been shortened to Herxheimer Reaction or simply, herxing...

...“The classic explanation of a Herxheimer Reaction in Lyme sufferers is that when Borrelia bacteria are killed off by an antibiotic or herbal therapy, parts of dead bacteria called endotoxins are shed,” explains Dr. Rawls. “These endotoxins then circulate throughout the body and cause an intense whole-body inflammatory reaction. And that makes the war against microbes that’s already going on inside your body worse.” https://rawlsmd.com/health-articles/lyme-herxheimer-reactions-your-guide-to-feeling-good-again



Your Lymph nodes may get swollen, and painful. Take a look into how to do self lymph massage to keep the toxins leaving your body. The girl below has a series of videos on this. Beware, you may want at look into what conditions that could make the massages dangerous, some heart troubles, etc. The below video is helpful to me with banishing a "headache" located in the lower jaw.

 
teri shapiro
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Great reminder about  herxing. I watched a medical medium podcast and he said a lot of people stop their health improving regimens if they feel worse, but it's just your body herxing, and to keep going.

If you do start to feel worse you can drink detox tea, or take activated charcoal (but never within 4 hours of anything else even food,) and there are other things you can do to improve your body's reaction to die off. You'll have to Google them though because I don't remember them off the top of my head. :D
I have other stuff going on besides Lyme and sometimes my memory is super shot.
and I also find vitamin c helps a lot.

 
Judith Browning
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Jessie Mellor wrote:Something to be aware of: Herxheimer Reactions.

Herxheimer Reactions, Defined

Herxing was first observed in syphilis patients by dermatologists Adolf Jarisch and Karl Herxheimer in the late 1800s and early 1900s, who noticed that sufferers receiving treatment often got worse before they got better. The phenomenon was dubbed the Jarisch-Herxheimer Reaction, and has since been shortened to Herxheimer Reaction or simply, herxing...

...“The classic explanation of a Herxheimer Reaction in Lyme sufferers is that when Borrelia bacteria are killed off by an antibiotic or herbal therapy, parts of dead bacteria called endotoxins are shed,” explains Dr. Rawls. “These endotoxins then circulate throughout the body and cause an intense whole-body inflammatory reaction. And that makes the war against microbes that’s already going on inside your body worse.” https://rawlsmd.com/health-articles/lyme-herxheimer-reactions-your-guide-to-feeling-good-again



Your Lymph nodes may get swollen, and painful. Take a look into how to do self lymph massage to keep the toxins leaving your body. The girl below has a series of videos on this. Beware, you may want at look into what conditions that could make the massages dangerous, some heart troubles, etc. The below video is helpful to me with banishing a "headache" located in the lower jaw.



I had this reaction after the ten days of doxycycline while I was continuing to take the j. knotweed/teasel tincture...I was glad I knew to expect it as otherwise I would have been in a panic.
 
The lymph massage is a great idea and this was one of the videos I've used.
 
Anne Pratt
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I'm so glad that the options are becoming clear and you're able to get both the antibiotics and the herbal medicine.

Rest.  And don't fret too much about the cognitive difficulties.  That's easy for me to say; I am retired and was able to extricate myself from the work I had committed to.  But although it took several months to get completely better, it did steadily improve.  It was nice to have my brain back.  Too bad the forced isolation of the pandemic has caused this brain to wander again!
 
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I hear turkey tail mushroom is used to treat Lyme disease (not on it's own), but in any case it would be beneficial to the whole body.
 
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QUIT all sugar and yeast, the lyme buggers feed on that.   pay attention to YOUR body and your reactions: knotweed did not agree with my body, but teasel root extract does, and is part of my daily regimen.  best of luck!
 
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I wish you the best in your recovery and hope you have good medical care. it seems on the internet there is as much good factual information about lyme as there is quackery. I only know this because I was severely effected by a a tick bite myself.
I suffered from babisiosis, a parasitic infliction much like malaria from a tick bite that put me in the hospital just over a year ago and severely effected my ability to function normally for months. have you been tested for additional parasites as well as lyme. you might want to be.
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